refract.me

So, for those that don’t know, the TED conference that focuses on “ideas worth spreading.” Top specialists in various fields are invited to talk on their area of expertise and how they would like to change the world. EEG collects electrical signals from the brain noninvasively (usually with a cap and a scalp  covered in goop).

Today, I got Dr. Aditi Shankardass‘s presentation, “A second opinion on learning disorders,” in my RSS feed (note: video and transcript are available on the page). And, I have very mixed opinions. Shankardass is an expert and is supporting a more medical definition of learning disorders; many learning disorders are defined by behavior as seen from an external view, not through the individual experience.

Yet, there were several things in this video that grated on me. First, the nit picky things. By “learning disability,” it actually means “neurological disorder.” Learning disabilities are things like dyslexia. Autism (which this lecture focuses on), ADHD, epilepsy, and other examples are not learning disabilities (although, they impact learning). I don’t know if Shankardass named the  talk, as there was a slide where learning disabilities were noted separately from these other disorders.

On to the just “ick” factor. For a seven minute video, “suffer” is used 7 times. Two of these were in relation to the neurotypical person suffering. Yes, because neurological disorders are the end all of intelligence. The locked/unlocked mind metaphor is used to describe communication deficits. Okay, just because the outside world isn’t getting the message, doesn’t mean a person is trapped.

Finally, the straw that gets Alison to write rather than crash on the couch: Shankardass states she found half of children diagnosed with autism actually have brain seizures. Okay, first, there is no explanation of the numbers of children in the study, what part of the autism spectrum they were testing on, and other real basic scientific process. (I tried finding a paper on this work, but haven’t turned up anything.)

I know damn well what it feels like when someone dismisses your disability or dismisses that you have a disability. By giving people more reasons to dismiss a disability, does not help people with disabilities. Alison’s inner theater¹:

Autistic Person: I have autism. Could you accommodate me by—

Neurotypical: —I heard that’s really just brain seizures.

Autistic Person: I don’t have epilipsy; I have autism.

Neurotypical: Have you had an EEG? Or maybe you should just try some seizure meds.

I wish I had a more optimistic view. But, I get to deal with people dismissing my disabilities, telling me “cures,” and ignoring my personhood regularly. I don’t expect people with autism to be free of negative experiences in relation to their disability. Which is different from “suffering” from a disability. It’s external forces (including people) that causes a person with disabilities to have difficulties.

¹ I do not have autism and do not speak for anyone with autism. Internal “theater” are compilations of a disordered mind.

This entry was posted on Thursday, June 24th, 2010 at 11:27 pm and is filed under Disability, Rant, Society. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed.