• About
  • Projects & Research
  • Publications
  • Archives
  • Categories
  • Archive for the ‘Goal’ Category

    Meeting Dr. Duck & More Ableism


    2009 - 12.18

    Dr. Duck has done wonderful work towards outreach and encouraging children to pursue science and math. His name is on several papers that I have come to love, rereading as if they were a beloved novel.

    I wanted to work with him.

    Up until I met him.

    Oh, and did meeting him hurt. My chest, two days later, still feels heartbroken. And I’m so tired of crying.

    I spent my time with him having tears welling up in to my eyes. My anxiety echoing through my head, telling me that I wasn’t safe here and I needed to leave. I cried most of the hour drive home. I didn’t realize why I was so upset beyond that he caused it. I was so happy about meeting him, and now…

    Turns out the person I admired counted disabled people as “other.” He repeatedly told me that his lab does education, not disability. These two  things are mutually exclusive in his mind. I guess disabled children aren’t worth educating; it isn’t an unheard of belief. But, to hear this from someone I admire, someone whose fucking research is education…? I was godsmacked. All the data and stories indicating that society has enforced the failure of persons with disability, the number of children that are disabled, the National Science Foundation (which doled out a lot of grant money to this guy) pushing that people with disabilities are needed to attain diversity in the sciences, none of these things occurred to him.

    When asked about my grades, I mentioned that I got two Cs in Calculus. And I briefly stated that my unaccommodated attention deficit was one of the reasons. “Yes, but what about your grades now?” I know that tone. I’ve heard it before. Directed at my brother who is on the more severe side of ADHD. That’s the tone of a pseudoskeptic. Someone that feels ADHD isn’t really a disability. Obviously, I just didn’t do well in Calculus and am making excuses. (We’ll just ignore the As on my assignments and the confused TAs.)

    I’m still upset now. But, I’m comforting myself best I can that I could have had him actually had him as an advisor; that would be infinitely worse.

    Why Visual Impairment?


    2009 - 10.25

    Alright, the standard belief is that people who want equal access, rights, etc. are stereotypically people that fall into the group that are being marginalized. I am by no measure blind; my nearsightedness is easily corrected with glasses.

    I am an individual with behavioral, learning, and pain disorders that affect my interactions with society. Why not work to improve individuals like myself?

    And there’s lots of reasons why I’ve decided I want to help people with severe visual impairment first.

    First up, people that are severely visually impaired have it a hell of a lot worse than I do. One of my friends is completely blind with not even light perception (extremely rare despite this being the imagined picture of the typical blind individual); I can’t send him Vimeo videos about research he’d enjoy because it isn’t accessible  (there isn’t a textual play). Even something as basic as keep backpacks out of aisles so he won’t trip is difficult for many people to grasp.

    As one can conclude from my research, having a severe visual impairment greatly decreases the opportunities a person has. I never had to worry about whether I would be literate, attend college, and be educated enough to have a profession; I assumed that I just needed to work for it. If a child has a severe visual impairment, this isn’t the case and that depresses and disgusts me.

    Secondly, helping others with different abilities does help me and many others. I find it very difficult to use a touchscreen because of the amount of attention necessary; staring at computer screens will give me a migraine, but I have limited choice with GUIs.

    The drive for multimedia also excludes people with hearing impairments, easily fatigued individuals, and even those that simply are in a hurry.

    Thirdly, and probably most importantly, just because I’ve decided to help one marginalized groups doesn’t mean I’m going to say “tough shit” to anyone else. Despite the common belief, I am not required to make an exclusive decision. I want to include as many people as possible; this just happens to be the area that I’m starting from.

    Trying to Make a Happy Place


    2009 - 09.24

    I’m a chronically unhappy person to the point of being somewhat cheery about it. And, to some degree, I think that’s because the little spark of optimism that I have keeps hoping for the world to get better.

    It’s a very silly thing when I describe what I want to do for the rest of my life: I want to make toys that help people. But I really want to create devices that are entertaining to use while serving a practical benefit. I firmly believe that designs work best if the widest range of backgrounds and implementations are considered. And I mean wide:

    • economic backgrounds
    • cultural heritages
    • education level
    • experience
    • age
    • gender
    • disability
    • ethnicity

    And I do care about practicality. I want to create things with some purpose so that they have a use beyond temporary amusement.

    I’m going to change the world. And I’m going to make sure that others have just as much fun while I’m doing it.